It's A Curve Ball,.. A large Curve Ball,..

I went to the doctor, they said the last visit i had was in 2002. Apparently my new doctor here ( a retinal specialist specializing in research for retinal diseases ) had been in contact with my doctor in Illinois to give me a firm final diagnosis.  After testing and another call to the other doctor they figured out the cases,..'s.

I've done a lot of looking back in the short time since Friday morning. I remember telling them about how hard it was to see at night, how my peripheral was bothering me too, and how it seemed i had lost more central vision even after my Stargardts should have halted.  They said it could be cone rod, no one gave me a firm diagnosis but they knew i had Stargardts become of the yellow spot presentation as well as other tests.I was told to wear my dark plum glasses 24-7 just in case, seemed they weren't sure.

My mentor Judy had a combination, the first i had ever heard. She had Stargardt's and cone rod dystrophy. Until that point i didn't know you could have both, not to mention two different eye diseases.Even with those both and her losing much sight she made the most beautiful paintings.


I think learning I have both retinal pigmentosa and Stargardt's took me by surprise only because i had become comfortable with how i was and how I saw the world. I thought it wouldn't change, that i was where i would stay. n other ways i felt relieved to have answers to what i knew was going on with my eyes.


I did hope i could find others who maybe had combinations or even the same combination. So far nothing but one person in a support group arguing the impossibilities of my condition. I have learned nothing is impossible.


So as I write here in this blog and go on my journey here, I have been thrown a curve ball, but im not out of the game. I feel inside me its even mroe important to continue painting and my artwork. I may not have some common visual impairment , but my art has never been common either.  I hope i find others like me that i can talk to I think I would feel less alone in that respect. I am lucky, blessed even for my family and friends. They are so supportive through everything and I am glad they are there to listen. I can not control how my remaining sight will go in the future but i can control my path and I will keep painting and writing no matter what.


I don't need a cure i have family.